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Monday, August 9, 2010

I'm here, I'm here.

I haven't written a post in over a month! Thing's have been rather crazy around here but I will have tons of updates this month since Bailey has a million and one follow ups because her birthday is next weekend. Yes my little miracle is going to be TWO and I can't believe it!

We just got back from Disney World and the AMCSI 5th Annual Convention! We had more than an amazing time. Saw alot of familiar faces and met a bunch of new ones too. It's amazing how in just a years time our AMC family has grown so much. I was blown away at how many people were there this year. The group picture was enough to make me cry alone. I am SO greatful for this group, they have been there through some of the hardest points in Bailey's life (so far) and pulled us right through if not only with kind words but love and advice also. I could say a million thank you's but they would never amount to what I feel for them all in my heart! Hopefully we will be able to attend next years convention in Kansas City!

We met with Bailey's Genetics doctor yesterday and she didn't have too much to say just that she had heard from Dr. Bamshad's office in Seattle and she strongly suggested we sign Bailey up for his research program. She also was worried about how Bailey compensated for her right leg/foot. She's been putting most of her weight on her left side and it's starting to affect her posture and her shoulders are now un-even so she wants me to bring it to Dr. vB's attention when we head to Philly on the 27th.

Also in the past several day's Bailey's whole right leg has been turning in we aren't sure if it is because she did so much walking in Disney World or if it is simply her hip dysplasia showing it's self. It's horrible though, she can't walk without stumbling and it has me worried. It's this way with or without her braces on. I've written an e-mail to Dr. vB and again we see him in 2 weeks. Hopefully it's nothing toooo serious right now.

I hope everyone is having a wonderful summer!

"All our dreams can come true, if we have the courage to pursue them." - Walt Disney

"Fall into me, my arms are open wide and you don't have to say a word cause I already see that it's hard and you're scared and you're tired and it hurts and I wanna be the one you reach for first."