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Thursday, February 2, 2012



((Bailey's new hair cut! She donated 10 inches to Locks of Love))

Bailey finished serial casting on her right foot on January 20th! Her foot was very sensitive to the touch and very sensitive to bear weight on. After almost 2 weeks of being cast free she finally started to walk independently again. She is still a little unstable and her foot doesn't look so good to me but she is back to walking and soon she will be able to go on the school bus without her Cruiser.

Within the last week Bailey has given up her Ninny. Bailey has been very attached to her ninny her whole life. In the last year we only allowed her to have it at night time or if she was sick but at almost 3 1/2 years old it was time to get rid of it all together. The first night was very rough with alot of tears but it got easier every night after that!

We have also been working very hard at potty training her! She has done extremely well with only 1 or no accidents a day! She has been wearing pull ups to school and big girl underwear at home! We are trying to find ways for her to pull her pants up herself, she can get them down but her hand strength just doesn't allow her to pull them back up!

In the last 5 months since Bailey has been in pre-school she mastered drinking from an open cup! So now as long as we are home she drinks from an open cup that's half full and she doesn't spill or gulp!

We are so very proud of all of her accomplishments! She is making lots of progress in a small time frame!

Up coming things:

- We are still awaiting Bailey's muscle biopsy to be scheduled!

- We have Bailey's 2nd parent/teacher conference and IEP meeting to discuss her getting services over summer!

- She has a GI appointment this month because her feeds will officially be over after slowly weaning her since her hospital stay in August! Hopefully she will not go into metabolic crisis!

- I am still trying to get Bailey outpatient Physical & Occupational therapy! She receives therapy at school but it is just not enough!

"Fall into me, my arms are open wide and you don't have to say a word cause I already see that it's hard and you're scared and you're tired and it hurts and I wanna be the one you reach for first."