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Friday, March 26, 2010

You find strength in your time of need.

Time for an update.

Monday March 22nd we went back to Shriner's to have Bailey's first cast removed and we ended up being shocked to find out her foot looked so good that a second cast was NOT needed! They fitted her for dual AFO's (daytime/night time) and adjusted her old one's to wear until we can pick up the new one's in about 4 to 5 weeks. Hopefully her foot will stay looking this good. She hasn't picked back up walking yet, her leg is sore but hopefully soon it will soon and she'll be back to her old self again.

It has been a month next week since Bailey's Gastro appointment and regretfully she has not gained a single pound, is still choking, and now is skipping meals since we have tried to change her diet around. Her doctor and I have been in contact through e-mail and Bailey must get the scope procedure and feeding tube for night time feeds since she has not made any significant progress in the last month. :( Bailey will be admitted to Children's National Medical Center April 5th for atleast 4 days to have both things done.

Please keep Bailey in your prayers as we get through this process.


"Fall into me, my arms are open wide and you don't have to say a word cause I already see that it's hard and you're scared and you're tired and it hurts and I wanna be the one you reach for first."